Ongoing research
The value of families’ experiential knowledge
In addition to utilizing the experiential knowledge from people with intellectual disabilities themselves, it is important to understand the lived experiences of their family members and others close to them. When family members are directly involved in supporting the person with intellectual disabilities, their care and support can be individually and effectively tailored to them. Therefore, it is essential to increase family involvement and to make optimal use of parents’ individual experiences. The AWVB collaborates with stakeholders to develop a support programme for family members and professionals, based on knowledge from scientific research, including the PhD research.
Supervisors
- Prof. dr. Petri Embregts
Producten
- Collaboration with healthcare professionals
- The informal network of people with intellectual disabilities
- Experiences of mothers who brought their child home at the start of the Covid-19 pandemic
- Experiences of parents when their offspring with an intellectual disability moves out
- Video: Building connections in the care of people with intellectual disabilities
- Guide ‘Building connections in the care of people with intellectual disabilities’
Publications
- F.R. Vereijken, N. Frielink, A. Jahoda & P.J.C.M. Embregts (2025). Continued Involvement: A Scoping Review on Family Members' Needs and Experiences Collaborating With Support Staff for Relatives With Intellectual Disabilities Living Outside the Family Home. Journal of Intellectual Disability Research
- M.D. Boer, S.A. Giesbers, N. Frielink, E. Roelofsen, L. Vromans & P.J.C.M. Embregts (2024). Experiences and needs of mothers concerning their involvement in the life and care of their adult sons with mild intellectual disabilities and autism spectrum disorders who display challenging behaviour and live in residential facilities. International Journal of Developmental Disabilities
- F.R. Vereijken, S.A.H. Giesbers, A. Jahoda & P.J.C.M. Embregts (2023). The experiences of parents arranging the move of their young adult offspring with intellectual disabilities to 24-hour residential settings; a continuing puzzle. Journal of Intellectual & Developmental Disability
- F. Vereijken, S.A.H. Giesbers, A. Jahoda & P. J. C. M. Embregts (2022). Homeward bound: Exploring the motives of mothers who brought their offspring with intellectual disabilities home from residential settings during the COVID-19 pandemic. Journal of Applied Research in Intellectual Disabilities